Angelman News – 10 – 14th July

July 14th

Meet the blind little boy who never sleeps but always has a smile 
Daily Mail
Rio Vicary suffers from Angelman Syndrome which means he is unlikely to ever walk or talk and needs very little sleep. His brothers don’t have the genetic 

Like You : Julie Durden – Angelman Syndrome Tribute – YouTube
I wrote this song, “More Like You” for my niece who is 16 and has AngelmanSyndrome. I also

70.3 miles of Mountain Madness | Foundation for Angelman 
About Angelman Syndrome · About the Foundation · Research · News And Events · Get Involved · ← Angel Runners LA Marathon

July 13

Finns Father – Blog Update

Brian Rattner and Other Parents Raising Awareness About Angelman

Angelman Syndrome is a neurological disorder that occurs in one in approximately 15000 live births. Characteristics of the rare genetic birth defect include…

July 12

‘We had to become experts on Clara’s disability . . . ‘
Irish Independent
From Tuam, Co Galway, Clara was 18 months old when she was diagnosed with AngelmanSyndrome, a neuro-genetic disorder characterised by no speech, 


About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness
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