Angelman News – 10 – 14th July

July 14th

Meet the blind little boy who never sleeps but always has a smile 
Daily Mail
Rio Vicary suffers from Angelman Syndrome which means he is unlikely to ever walk or talk and needs very little sleep. His brothers don’t have the genetic 

Like You : Julie Durden – Angelman Syndrome Tribute – YouTube
I wrote this song, “More Like You” for my niece who is 16 and has AngelmanSyndrome. I also 
www.youtube.com/watch?v=2EfeMEirMGE

70.3 miles of Mountain Madness | Foundation for Angelman 
About Angelman Syndrome · About the Foundation · Research · News And Events · Get Involved · ← Angel Runners LA Marathon 
blog.cureangelman.org/chads-tri-article/

July 13

Finns Father – Blog Update

http://finnsfather.com/post/26811870108/finns-friends

Brian Rattner and Other Parents Raising Awareness About Angelman

Angelman Syndrome is a neurological disorder that occurs in one in approximately 15000 live births. Characteristics of the rare genetic birth defect include 
news.yahoo.com/brian-rattner-other-parents-raising-awareness…

July 12

‘We had to become experts on Clara’s disability . . . ‘
Irish Independent
From Tuam, Co Galway, Clara was 18 months old when she was diagnosed with AngelmanSyndrome, a neuro-genetic disorder characterised by no speech, 

Advertisements

About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness
This entry was posted in Uncategorized. Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s