Angelman News 14 – 26th July 2012

Living with Angelman Syndrome – Downers Grove, IL 
Bill Yoakam, 25, of Naperville lives with Angelman Syndrome, a neuro-genetic disorder characterized by intellectual and developmental disability. Yoakam http://www.mysuburbanlife.com/photo_galleries/x306452478/Living-with-Angelman-Syndrome

A LIFECHANGING GIFT FOR DAVID Ardrossan and Saltcoats Herald
A SUPERB effort by a big-hearted businessman and his family and friends means a local Angelman Syndrome lad will be able to have the bed which will help him

http://www.ardrossanherald.com/news/threetowns/articles/2012/07/23/432295-a-lifechanging-gift-for-david/

Julile Duren Singer songwriter interview – http://tinyurl.com/cdu8j5a

Here’s the link to her song –

2012 Dinner Debate – Angelman Syndrome Foundation
The Angelman syndrome gene (UBE3A) is located at chromosome 15, band q12, as depicted … www.angelman.org/2012-dinner-debate/

FAST-initiated Clinical Trial | Foundation for Angelman Syndrome 
This may seem like an eternity, but it is actually an incredibly truncated timeline in comparison to other clinical trials for Angelman syndrome. The entire team 
blog.cureangelman.org/fast-initiated-clinical-trial/

Oakham mum Tracey tells of struggle to find special school place 
Rutland Times
Harry has Angelman Syndrome and Tracey is having problems finding a suitable school for him. A MOTHER from Oakham is struggling to secure a special school 

One year boy with Angelman’s syndrome never sleeps and never 
One Year Boy With Angelman’s Syndrome … Rio, a one year old curly-haired boy never sleeps, but smiles always and albinism made … more…
www.checkorphan.org/…/one-year-boy-with-angelman-s-synd…

 

 

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About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness
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