Angelman Announements #1 May 2013

Student refuses to let disorder hold her back

By Christina Calloway PNT senior writer ccalloway@pntonline.com Published: Thursday, May 16th, 2013

A person of few words, Sarah Walker’s action speaks volumes about her passion to help others.

___________________________________________

Life of an Angel

The smiles on the faces of individuals with Angelman syndrome (AS) belie a life marked by severe developmental delay, speech difficulties, seizure disorders and more. And yet, they go on

________________________________

Why I Support the Angelman Syndrome Foundation – Mike Ross

With much love, I am proud of the Angelman Syndrome Foundation. If you can help them, and families with this condition, please consider donating to them at

__________________________________________

Ben Philpot: Gene Awakenings for the Treatment of Neurological Disorders

Ben Philpot of the University of North Carolina at Chapel Hill discusses his project to screen for compounds that can reactivate the silenced MECP2 gene as a…

_______________________________________

Angelman Syndrome – Introducing beautiful Debra and Callie Rose 

For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11. The firs

_______________________________________

The Club Deportivo Guadalajara supports Angelman Syndrome Association by collecting used mobile phones and tablet in the official club shop

http://tinyurl.com/amyrf8c

__________________________

Lily Healing Angelman Syndrome – YouTube

What we need is more people who specialize in the impossible.’ ~ Theodore Roethke. On the 9th of April 2013, aged 16 months Lily was diagnosed with Angelman … http://www.youtube.com/watch?v=i5dDH6tgIws

___________________________

 Walk for Angelman syndrome Saturday in Chelmsford

CHELMSFORD — A benefit walk at the high school Saturday, May 18, will help raise awareness of a neurological disorder called Angelman syndrome, as well as for medical research, education and support. Angelman syndrome affects 1 in 15,000 people, ..

______________________________

Assurity Staff Raise $30k+ For NZ Research Into Angelman Syndrome » Assurity

______________________________________

Happy Mother’s Day: Mom Blogs on Patch

Melissa Winger blogs about her son Will who has been diagnosed with Angelman Syndrome. It’s such a rare diagnosis that she wants to educate as many people as she can about its existence and how she’s coping with the challenges it brings.

 _________________________________________

Heroes summoned to raise money for angels : Baraboo News Republic

Masked vigilantes will descend upon Baraboo High School this Saturday, bent on battling Angelman syndrome.

________________________________________

Students hold prom for cause

Students took a walk down memory lane by reliving their prom days for a good cause. All proceeds went to support Angelman syndrome.

_________________________________________

3-year-old boy battles Angelman Syndrome

A relatively little known disorder known as Angelman Syndrome is drawing focus in the medical world.

__________________________________________

Woman running half marathon as research fundraiser

Ravalli Republic  Angelman Syndrome is a rare neuro-genetic disorder that occurs in 1 in 15000 live births. …Angelman Syndrome is characterized by a happy demeanor,

_____________________________________

SEBASTIAN: 2013 Angelman Syndrome Walk (Long Island, NY)

http://www.youtube.com/watch?v=3mKMMKbHdOc

_______________________________________

Angelman Syndrome – A look at my Friends Tina & Jace | Four Lads 

Angelman Syndrome – A look at my Friends Tina & Jace. posted in Angelman Syndrome, Children, children parks family, Families, Uncategorized 
fourladsphoto.com/angelman-syndrome-part/

_______________________________________

 Hillsboro mom Pamela Lyman finds best Mothers’ Day gift in caring for son with Angelman Syndrome

Pamela Lyman had never heard of Angelman Syndrome before her son was diagnosed at 15-months-old. Lyman has learned a lot about the disorder in the last 11 years, but her son is teaching her that he’s “just fine.”

_______________________________________

 Logan is always smiling… but it’s really a symptom of his rare 

Belfast Telegraph
Logan, from Ballywalter in Co Down, has Angelman Syndrome, a rare genetic disorder which causes severe learning difficulties and leaves him unable to speak.

_______________________________________

angelman syndrome Photos & Pictures | OregonLive.com

Conrad Lyman, 11, navigates down the stairs at home with the help of his grandmother, Jean Blumenauer. Angelman syndrome makes coordination a challenge 
topics.oregonlive.com/tag/angelman%20syndrome/photos.html

READER SUBMITTED: Aiello Basketball Charity Winner
Hartford Courant
The Angelman Syndrome Foundation is glad he did. Based on his selections of the final four, and choosing Louisville to win the national championship, 

Yogapalooza to raise money for Fort Bend girl with rare disorder
Fortbendstar.com
 a 16-month old Pecan Grove girl who was diagnosed with Angelman’s Syndrome in March. “Angels”, as they are called because of their angelic demeanor, 

“Go The Distance” by Michael Bolton

Ethan dedicates this song to his little brother with Angelman Syndrome.

iPads for AS – Angelman

Made possible by a grant from the Foster Family Foundation, an organization that has been very generous in supporting the ASF’s mission, the iPads for AS program will provide up to 100 iPads to families that qualify based on financial need.

 

Advertisements

About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness
This entry was posted in Uncategorized. Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s