Angelman Announcements #1 July 2014

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Wheels widen world for people with disabilities

Gavin, 27, has Angelman syndrome, a genetic neurological disorder that affects about one in 15,000 people. People with the syndrome have developmental delays and cannot speak, but are most distinguished by a never-fading smile and consistently happy …

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Rising Stars fight for angelman syndrome in boxing event

AS THE name suggests, the Rising Stars 2 event is set to bring some of the best up-and-coming boxers from throughout Australia and the world to Caboolture.

With seating for 3200 spectators, the Queensland State Equestrian Centre provides the perfect arena for this impressive event, which will not only be a great night out, but will also raise awareness of Angelman syndrome through a charity fight.

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This is is a great video presentation click on the image to open the page to view

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Take Flight has been established to raise awareness and funds for Angelman Syndrome, an extremely rare genetic condition affecting just 2,300 people in Australia.

Angleman Syndrome is often characterised by developmental delay, severe speech impairment and an associated seizure disorder that is typically difficult to treat.

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15 July 2014

Medicinal Cannabis Oil

 

14th July 2014

Leamington siblings raise funds with their sister in mind

At Geiko hairdressing in Leamington on Tuesday Belle’s sister Leila, nine, will have her long hair cut off to raise money for the Angelman Syndrome …

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06 July 2014

Jack’s Helping Hand seeks funds to build playground for kids with special needs

Her son, Tassie, who was born with gastroesophageal reflux disease and a developmental disability calledAngelman Syndrome, required six surgeries.

 

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July 01 2014

Mother Ignored By The Oklahoma Legislature He has Angelman’s syndrome and epilepsy and the medication he takes for constant seizures isn’t working. Sonya wants Jonas to have CBD oil,

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Charity helps kids with disabilities get moving

Lana Kruger’s 7-year-old son Dominic suffers from a debilitating neurological disorder known as Angelman syndrome, which causes severe developmental delays.

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6/16/2014 – Andy & Lora Meerdo about the 1st Annual Angelman Syndrome Charity Golf Event  – Wonderful Podcast worth a listen.

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About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness
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