Angelman Announcements #2 July 2014

Fighting Angels Foundation

FAF was founded in honor of Joey Moretti Jr. and all the Angels with Angelman Syndrome. We help raise awareness and fund research for AS.

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Must be an angel: Brave girl with rare disorder can’t talk or sleep… but can never stop smiling

30th July 2014

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A mothers wish for the simple things. The often unseen side of Angelman Syndrome – things that can be taken for granted. An inspirational video from the Touched by an Angel fundraiser held by Angelman parents Frank & Joanne Caracoglia.
Produced by Upstair Studios.

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A touching clip where some Australian parents and siblings reveal the one question they would ask their loved one with Angelman Syndrome. What would you ask?

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On the side of the ‘Angels’

Fighting Angels Foundation, the nonprofit organization devoted to raising awareness and funding research for Angelman Syndrome, hosted its first .

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Scissor sisters and their brother raise money for charity

Belle has Angelman Syndrome, which means that despite being a happy child she is unable to walk, talk or eat without assistance and suffers from …

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Wheels widen world for people with disabilities

Gavin, 27, has Angelman syndrome, a genetic neurological disorder that affects about one in 15,000 people. People with the syndrome have developmental delays and cannot speak, but are most distinguished by a never-fading smile and consistently happy …

 

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About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness
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