Author Archives: humphriesnz

About humphriesnz

Live in Christchurch New Zealand with my family, Catholic, interested in music historic Fiction, Angelman Syndrome Awareness

Angelman Announcements March 2015

Giving Barnsy 18,000 reasons to smile | Photos   DUBBO residents gave Barnsy a reason to smile on Saturday evening at St Johns Primary School, with more than $18,000 raised for Barnsy and his family. dailyliberal.com.au|By Fairfax Regional Media ______________________________________________________________________________________________ … Continue reading

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Angelman Announcements – October 2014

ANGELMAN CARTOON This cartoon targets children from 5 to 8 y.o. who live around a child with Angelman SyndromE (family or schools…), but adults can enjoy it too ! This cartoon movie narrates the story of a relationship which happens … Continue reading

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Angelman Announcements #2 July 2014

FAF was founded in honor of Joey Moretti Jr. and all the Angels with Angelman Syndrome. We help raise awareness and fund research for AS. ______________________________________________________________ Must be an angel: Brave girl with rare disorder can’t talk or sleep… but … Continue reading

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Angelman Announcements #1 July 2014

__________________________________________________________ Wheels widen world for people with disabilities Gavin, 27, has Angelman syndrome, a genetic neurological disorder that affects about one in 15,000 people. People with the syndrome have developmental delays and cannot speak, but are most distinguished by a never-fading … Continue reading

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Angelman Announcements – May 2014

‘Grandma Brown’ creates dolls for children The second doll is headed overseas to England for a child with Angelman syndrome, a neuro-genetic disorder characterized by severe intellectual and developmental disability.n ______________________________________________________________ Remembering Patty Oneppo Many Have known Patty Smith Oneppo … Continue reading

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Angelman Announcements – February 2014

BISD parent: Special education teacher struck my daughter Thibodeaux’s daughter has Angelman Syndrome and does not talk, but, Thibodeaux said, she understands everything someone says to her. ______________________________________________________________ Parents lobby for son’s rare disease Richard Newton holds his 20-month-old son, Garrett, as … Continue reading

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Angelman Announcements December 2013

vzw Angelman Syndroom organiseert Music For Life Actie op Kerstmarkt ________________________________________________________________ FAST Global Summit 2013 WWW.USTREAM.TV The Foundation for Angelman Syndrome Therapeutics (“FAST”) is pleased to announce that the 2nd Annual Global Summit on Angelman Syndrome will take place on … Continue reading

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