Angelman Announcements November #2

Documentary to feature American Idol songwriter Regie Hamm

 

 and his wife Yolanda lost her job as a record label executive. To make matters worse, their daughter Isabella, adopted from China, had been diagnosed with a rare disorder, known as Angelman Syndrome, that challenged the family as they never imagined.

 

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Disabled Biddulph youngster Declan Copeland is standing tall after grant from 

The 11-year-old has epilepsy and Angelman Syndrome, a rare genetic condition which affects the nervous system and causes physical impairment and developmental delay.

 

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In the Pipeline: More than just a day at the Beach

Anthony suffers from Angelman syndrome, which is a neuro-genetic disorder characterized by severe intellectual and developmental disability, seizures, sleep disturbances, frequent laughter or smiling and a usually happy demeanor.

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YMCA recognizes Oakville peacemakers

Special recognition was also given to youth medallion nominee, Tatum Martino, 9, who made wallets to raise money and awareness for her friend and classmate, Callum Blackburn, who lives with Angelman Syndrome. The breakfast also featured a keynote ..

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Parents live life with an angel

Sue Tiffin, left, and Justin Tiffin are all smiles with their 11-month-old daughter Harper, who has been diagnosed with Angelman Syndrome. The couple moved ..

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Caring for the Caregivers

One local home here in Western New York is out to give back to those who give so much. Joe Ball’s son Kevin is 26 years old, and has Angelman Syndrome.

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Angelman Announcements November #1

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Remembering Zach 

– Vermond Zachery “Zach” Salmons, 22 of St. Albans, passed away October 25, 2013, at home surrounded by his family and friends. He was a member of the Angelman Syndrome Foundation and had attended the Church of God.

Thinking of and praying for this family

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Run In Owasso Honors Child, Raises Money For Disease Cure

A run in Owasso is raising money to help families with loved ones affected by a rare genetic disease. The Goldstein family lost their son Colby to Angelman Syndrome. He was four and a half. His family started this run to help similar
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Michael Sanderfer is a veteran, volunteer at the Phoenix Zoo, husband and a father to a child with special needs. His daughter has Angelman’s Syndrome and requires constant care. Medical bills made it difficult for the Sanderfer family to have enough credit points to get a VA home loan

Dad’s and Dudes with Angels

This is a Groups for Dad”s and Dudes whose lives are impacted/affected by Angelman Syndrome
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Angelman announcements – October #2

4599751749_500x409Christmas Card Angels  http://www.christmascardangels.co.uk

I’m Matt. I’m a copywriter. And I’m raising money for a charity called ASSERT, who support families with children affected by Angelman syndrome – like my adorable cousin, Nancy-Freja. But I’m not after your money.

 

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 –     Angelman Syndrome: A to Z

Please share your experiences in living with Angelman syndrome so others can learn. 
Living with AS has its own unique challenges and by collaborating and sharing tips, suggestions and best practices in a variety of areas, collectively we can all learn more and better support the development of our loved ones with AS.

Because of this, we are asking all caregivers of individuals with AS to share your experiences via the survey below. The survey will be available until November 8th. The information you provide will be used along with information from professionals to publish the 3rd edition ofAngelman Syndrome: A to Z, a complete guide to all aspects of living with AS, which will be made available to all families in electronic format. The Angelman Syndrome Foundation will be sharing the information you provide with families through other means in the future as well.

Click here to begin the survey and thank you for sharing your experiences!

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The Angel Runners Mission:
Our primary goal is to raise funds for research so that a cure may one day be found and implemented in those who battle with Angelman Syndrome. Our secondary goal is to create awareness around the globe, because with awareness comes outreach.

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Angelman Announcements October 2013 #1

 OtawaOttawa mother in dire straits finds plenty to be thankful for

Last week, Melissa Armstrong was desperate enough to put an ad on Kijiji asking for help in finding a used s..

Video: Mother thankful for the help from the communityOttawa Citizen

Melissa Armstrong and her two-year-old daughter, Tamiya “Miya” Brown, who was recently diagnosed Angelman’s Syndrome. Armstrong, a single mother, was ..

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A global perspective of Angelman Syndrome Your Premier Online Magazine dedicated to those affected by Angelman Syndrome, their families and their caretakers www.angelmantoday.com

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The video message focuses on families, like many of you, who struggled with securing the proper diagnosis for their loved one. Additionally, it outlines specific symptoms and methods for diagnosis.

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Angelwings

The Angel Wings Foundation was born out of Regie Hamm’s vision for raising awareness for Angelman Syndrome, and supporting the tremendous needs of special needs families worldwide. The Angel Wings Foundation is dedicated to providing real world and cutting edge therapies for children with the most severe and complicated forms of mental disability and to help provide practical assistance to their families.

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Angelman Announcement September #2

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Mountjoy School student has world at his fingertips with new tablet

A YOUNGSTER with a rare genetic disorder has the world at his fingertips after a funding boost from Bridport Round Table.

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Bristol boy named Britain’s ‘most caring child’.

An 11-year-old boy from Bristol has been selected from hundreds of entrants to be named the UK’s Most Caring Child. Samuel Dee was nominated by his mother Rebecca, for the help he gives to his younger sister Hannah, who has Angelman Syndrome.

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ANN ARBOR: Fundraising effort vital to Ann Arbor group providing therapy horse riding – Ann…

Therapeutic Riding Inc. (TRI), an Ann Arbor-based non-profit organization dedicated to providing therapeutic horseback riding and equine assisted activities for children and adults with disabilities, recently launched its largest annual fundraiser, TRI-FECTA.

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Normalizing protein level preempts Angelman symptoms — SFARI.org – Simons Foundation Autism…

One team has now shown that depleting excess levels of a molecule involved in neuronal firing prevents many of the symptoms in a mouse model of the syndrome4. They published their results 15 August in Cell Reports.

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Nehemiah gives Dakota Driggers a hug Friday morning after meeting Nehemiah’s new service dog, Zeus, for the first time.ZEUS COMES HOME

Sandy Shaffer’s classroom at Springfield Elementary School was buzzing with anticipation Friday morning her students, some of whom have moved on to middle school, gathered to await the much-anticipated arrival of Zeus, a service dog for 7-year-old Nehemiah Dandy.

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Angel Announcements September #1

6 September

Smiling toddler Ollie is one in 1,000 | Real Life | Life & Style | Daily Star. Simply The Best 7…

http://www.dailystar.co.uk/real-…
TODDLER Ollie Petherick has a rare brain disorder that means he cannot stop smiling. (Real…
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Caregiving contest to reward top storytellers/

Santa Clarita – Shield HealthCare in Santa Clarita announced its 13th annual story contest “What Makes Caregiving Rewarding?”
 
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Okotoks healthy option for family | Local News | Okotoks Western Wheel

The Okotoks Western Wheel, your source for Okotoks news, events, and community
 
“He has Angelman’s syndrome but he also goes into respiratory distress very quickly,” Kristal said. “He had been in an out of the hospital since February and we got him home on June 7. His birthday was flood day and two days later he ended up back in 
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August Announcements #2

More Exciting news from August

Melissa Adams with brother Jacob

Angelman Syndrome sufferer Melissa Adams wins hearts of her Eccleston Mere School school friends

A YOUNG girl saw off her school year in style when a farewell party was thrown by her classmates, whose hearts she has touched since she was four-years-old.

Little Melissa Adams suffers from the rare condition Angelman Syndrome, which has left her with a number of disabilities.

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CD grad Dan Fisher using kicking ability to raise money for foundation: Five at 5
 

The field goals made by Central Dauphin graduate Dan Fisher are going to mean a lot more than three points for Bloomsburg University this season.

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‘Deviation’ & innovation Innovative Services NW celebrates 50 years

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Tippy Valley HS Football Players Build Ramp & Deck For Special Needs Family

WARSAW, Ind. (21Alive) — Tippecanoe Valley High School student Nolan Sponseller walked into the Habitat for Humanity of Kosciusko office last spring in need of a project to successfully complete his….

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Angelman Syndrome – Local 12 WKRC-TV 
Researchers at Cincinnati Children’s Hospital are one of just seven sites in the country now local12.com

 

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Lack of sleep limits ability to curb cravings

San Francisco Chronicle – The two conditions are Angelman syndrome, a neurogenetic disorder characterized by seizures, intellectual impairment and frequent laughter or smiling, and 

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Family forced to give up loved dogs

Northern Advocate Whangarei mum Gemma Bradburn with Caleb – who has the rare Angelman Syndrome – is looking for a good home for the family’s two dogs. Supplied. Juggling ________________________________________________________________

Heather Crawford SLT Part 1

Heather Crawford MBE, Lead professional SLT, South Eastern Trust, County Down speaking at ASI parent workshop. Dublin July 2013 .

Heather Crawford SLT – part 2

Part two of presentation to Angelman Ireland parents – Dublin July 2013.

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